 |
 |
|
 |
 |
|
|
Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent,
and Young Adult Cancers New! Version 3.0 of Long-Term Follow-Up Guidelines |
||||||||||
|---|---|---|---|---|---|---|---|---|---|---|
The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers were developed as a collaborative effort of the Nursing Discipline and the Late Effects Committee and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces. The purpose of these guidelines is to provide recommendations for screening and management of late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric malignancies. These guidelines represent a statement of consensus from a panel of experts in the late effects of pediatric cancer treatment. The recommendations are based on a thorough review of the literature as well as the collective clinical experience of the task force members, panel of experts, and multidisciplinary review panel (including nurses, physicians, behavioral specialists and patient/parent advocates). Implementation of these guidelines is intended to increase awareness of potential late effects and to standardize and enhance follow-up care provided to survivors of pediatric malignancies throughout the lifespan. The Long-Term Follow-Up Guidelines were developed as a resource for clinicians who provide ongoing healthcare to survivors of pediatric malignancies. A basic knowledge of ongoing issues related to the long-term follow-up needs of this patient population is assumed. The screening recommendations in these guidelines are appropriate for asymptomatic survivors of childhood, adolescent, or young adult cancer presenting for routine exposure-based medical follow-up. More extensive evaluations are presumed, as clinically indicated, for survivors presenting with signs and symptoms suggesting illness or organ dysfunction. The current version of these Guidelines is Version 3.0 – October 2008. As new information becomes available, the guidelines will be updated periodically to reflect those changes. We recommend that clinicians check this website periodically for the latest updates and revisions. Healthcare professionals who do not regularly care for survivors of pediatric malignancies are encouraged to consult with a pediatric oncology long-term follow-up center if any questions or concerns arise when reviewing or using these guidelines. These guidelines are not intended to replace clinical judgment or to exclude other reasonable alternative follow-up procedures. The Children’s Oncology Group recognizes that specific patient care decisions are the prerogative of the patient, family, and healthcare provider. Although the information within the guidelines will certainly prove valuable to the survivors themselves, at this time the only version available is targeted to healthcare professionals. Therefore, survivors who choose to review these guidelines are strongly encouraged to do so with the assistance of a healthcare professional knowledgeable about long-term follow-up care for survivors of childhood, adolescent, and young adult cancers. This is important in order to put the recommendations in perspective, avoid over-testing, address potential anxieties, and provide a comprehensive evaluation of the survivor’s health status. The Children’s Oncology Group itself does not provide individualized treatment advice to patients or their families, and strongly recommends discussing this information with a qualified medical professional.
|
||||||||||
Click below to download the Guidelines: Long-Term Follow-Up Guidelines Click below to download Appendix I
(Materials for Clinical Application of the LTFU Guidelines): Click below to download the following Materials for Clinical Application of the LTFU Guidelines: Click below to download Appendix II
(Entire set of Health Links): Click below to download individual
Health Links: |
||||||||||
|
Copyright 2008 © Children's Oncology Group All content posted above are the property of the Children's Oncology Group. All rights reserved. |
||||||||||
The Children’s Oncology Group grants permission to download the Children's Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (including Appendices, Materials for Clinical Application, and Health Links) from www.survivorshipguidelines.org and to print copies for individual and institutional use, as long as the following conditions are met: (1) Copies are not sold or distributed for commercial advantage, and (2) the Children's Oncology Group copyright and its date appear on the printed copies. Disclaimer and Notice of Proprietary Rights: Introduction to Late Effects Guidelines and Health Links: The "Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers" and accompanying "Health Links" were developed by the Children's Oncology Group as a collaborative effort of the Late Effects Committee and Nursing Discipline and are maintained and updated by the Children’s Oncology Group’s Long-Term Follow-Up Guidelines Core Committee and its associated Task Forces. For Informational Purposes Only: The information and contents of this website (including all text and graphics), the information and contents of each document or series of documents posted on this website or containing the title "Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent and Young Adult Cancers " or the title "Health Link", whether available in print or electronic format (including any digital format, e-mail transmission, or download from the website), shall be known hereinafter as "Site Content". All Site Content is for informational purposes only. The Site Content is not intended to substitute for medical advice, medical care, diagnosis or treatment obtained from a physician or health care provider. To cancer patients (if children, their parents or legal guardians): Please seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition and do not rely on the Site Content. The Children's Oncology Group is a research organization and does not provide individualized medical care or treatment.No endorsement of any specific tests, products, or procedures is made by Site Content, the Children's Oncology Group, or affiliated party or member of the Children's Oncology Group. No Claim to Accuracy or Completeness: While the Children's Oncology Group has made every attempt to assure that the Site Content is accurate and complete as of the date of publication, no warranty or representation, express or implied, is made as to the accuracy, reliability, completeness, relevance, or timeliness of such Site Content. No Liability on Part of Children's Oncology Group and Related Parties/ Agreement to Indemnify and Hold Harmless the Children's Oncology Group and Related Parties: No liability is assumed by the Children's Oncology Group or any affiliated party or member thereof for damage resulting from the use, review, or access of the Site Content. You agree to the following terms of indemnification: (i) "Indemnified Parties" include authors and contributors to the Site Content, all officers, directors, representatives, employees, agents, and members of the Children's Oncology Group and affiliated organizations; (ii) by using, reviewing, or accessing the Site Content, you agree, at your own expense, to indemnify, defend and hold harmless Indemnified Parties from any and all losses, liabilities, or damages (including attorneys' fees and costs) resulting from any and all claims, causes of action, suits, proceedings, or demands related to or arising out of use, review, or access of the Site Content. Proprietary Rights: The
Site Content is subject to protection under copyright law and other
intellectual property protection law in the United States and
worldwide. The Children's Oncology Group retains excusive copyright and
other right, title, and interest to the Site Content and claims all
intellectual property rights available under law. You hereby agree to
help the Children's Oncology Group secure all copyright and
intellectual property rights for the benefit of the Children's Oncology
Group by taking additional action at a later time, action which could
include signing consents and legal documents and limiting dissemination
or reproduction of the Site Content. |